Thursday, July 9, 2015

The road starts here and has way more than two paths

Today starts with the frustration of others not knowing how to understand or learn about kids that are twice exceptional.

I don't mind using my own son as the case study....that sounded terrible, as an example for those who don't understand, to learn from.  Today's events sparked my thoughts to truly become more open about Britton and his daily (struggle isn't the right word) challenges.  He wakes up and asks question after question about the goings on of each day or more specifically wants to talk about the cloud shapes, the cube of the number 8 or how to spell a word that most 6 year olds don't even know.

So why is it so difficult for others to understand him?  I'm not sure, maybe it's that most of the world has expectations that kids or anyone for that matter live in a boxed up type of personality and emotion and life.  Well, that is NOT Britton.  He is so unique and he loves it.  He told his 14 year old cousin the other day, "we are unique and that is good, we don't want to be boring".  His cousin is gifted and they share so many characteristics that are remarkable.  His mother and I share on a regular basis how much C was like Britton as a younger boy.

Britton started the Summer Institute for the Gifted a few weeks ago.  I got a call every single day for the first week telling me of all of the bad things Britton was doing.  I tried my best as a parent to remain calm and explain how hard things were for the Director.  Oh-and go back a few days before the camp began?  The Director of the National Program called to just about talk us about of coming to the camp.  She let me know they "weren't sure they could handle a child like Britton".  Talk about a knife through the heart.  Well, as I am my sons biggest advocate and I do NOT take no for answer, especially when it comes to Britton and his abilities, I talked her into it and said, "see you all in a few days!".  Off we went to Atlanta after that.  (dejavu from a previous conversation we had with a KC Private school that said the same thing about B)

The first week was tough.  Britton likes to touch others when he shouldn't, has a hard time hearing multiple step instructions, loves to make sure everyone is doing every as they should, and is constantly seeking attention from peers and especially from teachers.  Every single afternoon the Director would call me, tell me all of the 'bad' things Britton did and we would talk about what could be done that next day to help him cope.  You sure would have thought from these calls he was such a bad little kid.  Oh boy.....but after me calming the director down and after us doing some great brainstorming we found some solutions.  One issue?  For some reason he was acting out so much in Geometry class.  I can't even express how my husband reacted to this one, but it was along the lines of, "DUH---He was bored out of his mind!"  So we changed a few questions and had him attend a few that he had not experienced yet.  She even called once and told me he seemed tired and maybe should only do the part time program.  Ha!  I explained to her that since he was 8 weeks old, he has known nothing but full time school every single day.  That maybe he needed a quieter environment or a sensory type break.  So, one of the afternoon classes is now the same teacher and room he has in the morning and one other class is Art, which is quiet, small and he gets to use his senses to explore and enjoy.  Although he is profoundly gifted in math, it doesn't mean he doesn't love being outside and doing things like art and music and even more!  Of course he would prefer math and brings math along in every single thing he does in his day.

So far the camp is ending well.  Now on to the next one in a few days.  We're trying Drama camp, and thank goodness they have a special education program within.  Wouldn't it be remarkable if more cognitive/educational camps were required to study and learn about twice exceptional children?  This camp says they receive training in that area, but I can tell it's not enough.  When I called to ask if we should even apply I was told, "of course!" that everyone just adores children with special needs and wants them to be a part of what they are providing.  I question this as a parent, but as a future educator, I know there is so much left to be done.  So much education to provide and so many future educators to help immerse in this area.  Boy am I ready to get that done.



Inside Out

I'm pretty sure we're the only family who doesn't have an amazing revelation about the movie Inside Out.  I follow too many autism, 2e and gifted blogs to even count anymore.  We're in Atlanta for 2 more days at the Summer Institute for the Gifted.  It's a 3 week intensive opportunity for Britton to take 4 classes (Rainforest, Rocks and Minerals, Chemistry and Art).  It's been tough being away from our norm, but also amazing being treated so well by family and friends as we stay with them.  First, and sorry this isn't about the movie, but Britton has/had a HUGE fear of dogs.  Well, the family we're staying with?  Has 4 of them.  We're considering stealing one of them on the way out...but most likely won't.  However, I now know if we do ever get a dog what kind we should get.

So, last weekend I took Britton to a neighboring town to see Inside Out.  I think every autism parent, and so many others were thrilled to see this movie that reveals so many emotions.  I had this great thought and true deep hope that this was the one.  The movie that would help unveil emotion in a way that Britton might accept, learn or adapt some emotion into his world.  He giggled, worried and enjoyed the movie overall.  And here after the movie I was so ready for the questions, thoughts, and great revelation to happen.

Well....I kept waiting.  And waiting.  Oh WAIT....Britton has emotional regulation issues, sensory processing disorder, language processing (expressive and receptive) oh and autism.  Forget that he's gifted, this is not something that makes him magically understand emotion and interpret this movie as a guide for him to feel, interpret and 'get' emotions now.  So I kept waiting.  Oh wait...he did have a mini meltdown.  He did get upset at his dad for not being there.  He got really upset with me after the movie.  Then?  Then we went on with our typical night.  It was as if we never went to the movie. Sure it was good, and yes, maybe for some other parents and children it was a revelation.  For us?  It was just movie #22 (I have no idea, but if you ask Britton, he'll know).  I did the 'right' thing as an autism parent and tried a few posed questions about the movie, but got our typical response of 'I don't know".  But if you wanted to hear about cumulonimbus clouds as the storm was approaching or a complicated thought about why some drivers are terrible driver, you could have joined our conversation in a heartbeat.

Don't get me wrong, I think the movie could be great for many families.  It opens doors for conversations whether you're dealing with developmental disorders, emotional regulation, executive functioning issues and more.  I'm glad it was out there for so many to find relief and open doors for them.  For us?  Nada.

It's something we've come to expect and learn about our son.  He is one of the most caring and loving children you can find.  He understands emotions quite well, and has memorized what all of them mean.  Social Justice issues are at the forefront of his mind and yes, he gets upset, frustrated and more.  However, to address them in meaningful conversations or to grasp them in real time is so tough for him.  I will hopefully be able to prepare him through life as he meets a partner one day.  I hope his dad teaches him how challenging expressing yourself that way can be.  I hope that one day when asked, "how are you feeling about this" he can find the words to express himself.  For now though?  It's a world that he has to maneuver, which frustrates and confuses him.

So, Inside Out, thanks for the entertainment, but that's about it.